The Alzheimer's Association will hold a Memory Walk Commmittee Meeting on Monday, July 13th 3:30 PM at Lehigh Commons!
Where: 1680 Spring Creek RdMacungie, PA 18062-974, (610) 530-8089
Special Guest: Adam Recke and his family! Adam's dad, Sean will talk to our Committee about the Walk and what this local family is facing! We have asked the family to have Adam as our "Honored Guest" at this Year's Memory Walk..... and they have agreed! Adam Recke is a 4th grade student at Farmersville Elementary School in Bethlehem Township. He was diagnosed with Type C Niemann-Pick Disease (Childhood Alzheimer’s)...Adam's nowhere near 65, the age at which the risk of dementia starts to zoom.
Some of you may have never heard of Niemann-Pick Type C, or NPC .....
Did you know that kids with NPC lose their ability to walk, talk or even to remember the name of a favorite stuffed animal??
This incurable disease, which afflicts about 500 children in the USA, has been called the pediatric version of Alzheimer's, a disease that afflicts 4.5 million people — most of them seniors — in the nation today.
Alzheimer's is thought to be caused by abnormal brain deposits, almost identical to the deposits seen in children with NPC, says NPC researcher Steven Walkley of the Albert Einstein College of Medicine in the Bronx. Children who live long enough with NPC also can develop dementia, he says.
"A lot of us think that if we could really understand NPC, maybe it would help us understand Alzheimer's," he says. Consider coming out to find what this family is facing and how the Alzheimer's Association plans to work with them!
If you would like to attend the meeting, please contact Sara Drey 484-951-2330 or sadcelt@aol.com
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